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Worcestershire Health and Care NHS Trust
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Motor Neurone Disease

South Worcestershire MND Network

The South Worcestershire MND Network are a group of Health and Social Care Professionals working in and around South Worcestershire with people who Motor Neurone Disease.
 

Our Aims

• To promote awareness of our services to patients, carers, GPs and other health and social care workers.

• To have a forum to discuss issues and case reviews and make referrals between members.

• To provide opportunities for educational events where appropriate/needed.

• To maintain up to date knowledge about developments, services and drug trials in MND.

• To improve access to health and care services for people living with MND in our region.


Meetings

We meet 3 months at St Richards Hospice. We discuss local issues relevant to MND and allocation time for case discussion and inter-agency referral (with patient’s permission).
 

Join the Network?

Health and Social Care Professionals are welcome to join the group or to attend meetings on an ad-hoc basis.

If you are currently looking after a person living with Motor Neurone Disease and would like to know more about the network, please feel free to contact the number below for further information.

Kath Mullins 
Tel: 01386 502386
Email: kathryn.mullins@hacw.nhs.uk.    

Belinda Yates
Tel:
01386 502546
Email:
belinda.yates@hacw.nhs.uk  

Diagnosis

A diagnosis of MND can be overwhelming but there is a whole range of help and support available within South Worcestershire and through the MND Association.

 

Regional Care Centres

There are twelve specialist MND Care Centres across the UK including Birmingham (Queen Elizabeth Hospital) and Oxford.

GPs can make referrals to the neurologists at either of these centres for a diagnosis or second opinion.

Patients will be seen by a team of specialist health professionals and may be offered the chance to take part in any current drug trials.

They may be referred to other specialists who link into these care centres such as respiratory consultants. They will also receive ongoing support and advice.


MND Association

The MND Association produce a personal guide of information and practical advice for anyone diagnosed with MND. There are additional optional sections that can also be ordered.

To order your pack, contact the MND association.
Tel:
08457 626262
Web:
www.mndassociation.org

 

Members of the Network

St Richards Hospice

The hospice team includes their own doctors, nurses, social worker, counsellors and therapists working alongside highly trained volunteers.

One of their main aims is to enable patients to stay at home where possible, providing their care alongside their own doctors and nurses with the backup of the Day Hospice. When appropriate, patients may be admitted to the In-patient Unit. The day hospice offers the opportunity to socialise in a supportive environment, access expert advice in an informal setting and try out complementary therapies. The hospice also provides support in the community through the work of clinical nurse specialists, family and carer support practitioners and consultant physicians.


To contact:

St. Richard’s Hospice Foundation:

Wildwood Drive
Worcester
WR5 2QT
Tel: 01905 763963
Fax (General): 01905 760938
Email:
enquiries@strichards.org.uk 
Registered Charity Number: 515668

KEMP Hospice:
Tel: 01562 756000
Email: info@kemphospice.org.uk
Address: 41 Mason Road, Kidderminster
DY11 6AG
Web: www.kemphospice.org.uk
Macmillan Nurses can also be contacted at
Kemp Hospice.

Regional MND Nurse Specialist:

Heidi Jew – Queen Elizabeth Hospital MND Care Centre (Birmingham)
Email:
heidi.jew@uhb.nhs.uk 
Tel: 0121 472311 Ext: 8626
Mobile:
07771 624712

Local Neurological Nurse Specialists (South Worcestershire:

Kath Mullins - Lead Nurse in Complex Neurology & Rehabilitation
Email: kathryn.mullins@hacw.nhs.uk 

Katie Bingham
Email: catherine.bingham@hacw.uk 
Tel: 01386 502357

Local Neurological Nurse Specialists (Wyre Forest:

Amanda Jallands - Neurological Nurse Specialist
Email: amanda.jallands@nhs.net

Pat Bourton - Occupational Therapist
Email: pat.bourton@nhs.net

Lynne Harris - Physiotherapist
Email:
lynne.harris@nhs.net


Clair Amos - Administrative Support
Tel:
01562 513001

 

Useful Contacts:

MND Association:

Tel: 08457 626262
Web: www.mndassociation.org

Community Occupational Therapy:

Tel:
01905 681637 or fax: 01905 681658 

Physiotherapy:

Tracey Burgess (Droitwich Medical Centre)
Kirsty Mair (Evesham Community Hospital)
Janet Mead (Malvern Community Hospital)

Dietician:

Sarah Trenbirth (Worcestershire Royal Hospital)
Tel:
01905 733953

Benefits Enquiry Line:

Tel: 0800 882200

Social Services:

Contact Centre: 0845 207 6000
Email:
socialcare@worcestershire.gov.uk  

Other Members:

• GPs

• District Nurses

• Wheelchair Services

• Palliative Care

• Intermediate Care

community neuro rehabilitation redditch and bromsgrove)
community neuro rehabilitation wyre forest

Leaflets available to download